Hello Friends,
The 2020 whirlwind continues on. Since our last newsletter, we’ve seen ups and downs with COVID-19 rates, promising vaccine news and a nail-biting general election. And while some states are still counting ballots, we’re keeping an eye on the implications for health policy decision-making and preparing an exciting new resource that will help all of us get to know the newest members of Congress and their health care priorities—scroll down for more info on that!
We've been busy supporting our clients along the way, including launching a new philanthropic fund to support adolescent mental health, sharing critical information on prostate cancer, building a polycystic kidney disease patient advocacy network and kickstarting a movement to improve care for rare kidney disease patients. We also hosted two additional webinars in our Art of Advocacy© series on thought partnership and identifying the right partners for your organization.
While we’re excited about the work we’re doing, the team is still prioritizing our mental and physical health during these tumultuous times—and we hope you’re doing the same!
Have a happy and healthy Thanksgiving! We’re so grateful for all of you.
|
|
Stay CURAgeous,
|
|
|
If you’re starting to think through your 2021 advocacy and public affairs strategies, or just want to stay smart on federal health care issues, we’ve got something in the works that will help!
CURA Health Policy Profiles: A Guide to the Freshman Members of the 117th Congress is a free, comprehensive guide that profiles the health policy positions, interest and priorities of every new member of Congress.
Created to equip advocates, journalists and government relations professionals with a convenient tool to understand the incoming class of D.C. power players, the e-book features analysis based on more than 200 hours of research on every Senate and House freshman.
Preorder your copy today! You’ll receive a link to download the entire e-book when it's released in early December.
|
|
Launching a New Adolescent Mental Health Fund
|
|
|
If you provide mental health services to adolescents who are of color and/or LGBTQ+, there’s a new fund you should know about! CURA is proud to have partnered with Panorama Global to launch The Upswing Fund for Adolescent Mental Health, seeded by Melinda Gates’ Pivotal Ventures. Interested in learning more? Visit theupswingfund.org.
|
|
|
Igniting the Rare Kidney Revolution
|
|
|
Over the past few months, CURA worked with Travere Therapeutics (formerly Retrophin) and NephCure Kidney International to convene patient advocates, industry representatives and government stakeholders to explore policy issues and recommend potential solutions to improve the diagnosis and treatment of rare kidney diseases. Check out the resulting community call to action paper at rarekidneyrevolution.com.
|
|
Empowering PKD Advocacy Champions
|
|
|
We teamed up with the Polycystic Kidney Disease (PKD) Foundation to launch their Advocacy Champions Network (ACN)—a group of PKD community members around the country empowered to engage in federal advocacy efforts. Members of the ACN are hand-picked to share their personal stories and advance the legislative priorities of the PKD community. Learn more about the ACN at pkdcure.org/advocacy/acn/.
|
|
|
Honorable Mention for Outstanding Boutique Agency of the Year!
CURA received an honorable mention for 2020's Outstanding Boutique Agency by PRWeek. The competition was stiff, so we're extremely proud to be among the top of the list!
|
|
|
|
We celebrated a lot of work anniversaries this fall, with four team members marking off another year at CURA. As indicated in the fun Brady bunch style gif below, Casey celebrates four years at CURA, Kellsie: three, Alex: two, and Andrew: one. Cheers to this CURAgeous bunch!
|
|
|
This fall, we wrote to those living in nursing homes who couldn't have visitors due to COVID restrictions. Physically distancing doesn't mean we have to be socially distant. Checking in with people in your community can go a long way in preventing loneliness and feelings of isolation and we're happy to do our part!
|
|
|
|
|
|
