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Travere Therapeutics seeks to help patients raise their voices and share their stories with policymakers, media and other influencers. We wholeheartedly believe that patient advocacy is vital to advancing change that will improve the lives of people living with rare diseases.
We invite you to take this course to help hone your advocacy skills in shaping policy change. By investing one hour in watching these video lessons, you will be better equipped to effectively advocate for important issues that affect families living with rare diseases. The focused attention of a policymaker, or a congressional staffer, is precious. In fact, most meetings will only be 15 – 30 minutes, so it’s important to make the most of every second. The videos will help refresh your memory on how Congress works and offer context for the meetings held and the people involved. Most importantly, the videos include helpful tips on how to share your story in the most impactful way for this audience.
The 60-minute course is divided into 9 lessons:
- What is Advocacy?
- Your Voice Matters
- How to Tell Your Story
- Getting to Know Congress
- Roles of Congressional Staff
- How to Effectively Participate in Congressional Meetings
- The Federal Appropriations Process
- Amplifying Advocacy through Social Media
- Using the Media in Advocacy
This course is available for free to you. We just ask that when you are finished with the course, please take five minutes to fill out our survey.
Remember, when it comes to living with a rare disease, you are the expert!
Thank you for taking the time to share your story with them.
