Synthesized input from over 40 stakeholders across three workgroups (insurance, innovation, DEI) to develop and design a policy playbook for revolutionizing rare kidney disease.

Coordinated a virtual event to promote the playbook that included live and pre-recorded messages from congressional members and advocacy leaders.

Organized a multi-stakeholder roundtable to identify collaborative opportunities for accelerating rare disease diagnosis and treatment

Created report landing pages with patient videos and promoted through stakeholder toolkits, social media and paid ads.

Organized a reception on Capitol Hill with patient advocates to educate policymakers on the experiences and unmet needs of rare kidney patients.